Cystic Fibrosis Victoria
Cystic Fibrosis Victoria (CFV) was founded in 1974 by a group of parents of children with CF and became an Incorporated Association in 1984.
To promote research, increase awareness of Cystic Fibrosis and provide education, support and advocacy to Victoria's Cystic Fibrosis community.
CFV is the only health and research support services organisation providing comprehensive services Victoria-wide to over 900 children, young people, adults and families living with CF to: promote awareness, carrier screening & early detection; provide support services and programs; provide education, advocate and lobby on behalf of individuals and the CF community; and support both medical and social research allowing for improved treatment, care and understanding of CF. CFV was founded in 1974 by a group of parents of children affected with CF, who started the first parent peer support group in Victoria.
Cystic Fibrosis (CF) is the most common genetically inherited, life-shortening disorder affecting young Victorians today. Twenty years ago children born with CF were not expected to reach adulthood. Positive advancements in the treatment of CF however mean that there are better health outcomes and affected people can live longer. Currently 50% of people with CF can hope to reach over the age of 35, with a small percentage receiving life changing organ transplants giving them renewed hope for a healthier and longer life.
❊ Web Links ❊
→ Cystic Fibrosis Victoria
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